Bill McCue

A little info on hair. Hair grows out of little pockets in your skin, called follicles. Here’s how it happens: (1) Your hair begins growing from a root in the bottom of the follicle. The root is made up of cells of protein. (2) Blood from the blood vessels in your scalp feeds the root,

ANATOMY OF SKIN Submitted by Murray R, Vancouver, British Columbia. A little info on skin. Your skin is the largest organ on your body, made up of several different components, including water, protein, lipids, and different minerals and chemicals. If you’re average, your skin weighs about six pounds. It’s job is crucial: to protect you

From the Editor… It took almost four months, two dermatologists, and six days in a hospital bed, to be “officially” diagnosed with pityriasis rubra pilaris. It took only four more days for me to conclude that I had embarked on a three to five-year journey that would ultimately end with remission. Fortunately, my journey lasted

Editor’s Note Whether you are a newcomer or a seasoned traveler, the more you know about pityriasis rubra pilaris, the better prepared you will be for the journey ahead. The following information has been developed to enlighten PRP patients and their caregivers, family and friends, teachers and school administrators, and employers and co-workers. This information

Here’s something that dermatologists are unlikely to share with a newly diagnosed PRP patient: “The combination of topical ointments, cream, and lotions you will be prescribed and the relentless shedding of skin, will put an extraordinary mental and physical strain on you, caregivers, and push your washing machine to its mechanical limits. For many, the

Editor’s Note: This webpage focuses on the PRP Global Database as of January 31, 2020, the PRP-related data we capture, and why the data is important to every member of the PRP global community. Whether you are a patient, loving caregiver (spouse, partner, or parent), an extended family member, friend or a healthcare professional, the

    The EveryLife Foundation has been leading a National Burden of Rare Disease Study with the goal of yielding a powerful tool for patients and organizations to use to advocate for the development of policy, therapies, and diagnostics aimed at reducing the burdens that rare diseases place on patients and their families. We are

The following INDEX provides a quick scroll of over 100 words, terms and jargon currently included in the PRP Patient-Friendly Glossary of Word, Terms & Jargon. You may return to actual PRP Glossary at any time. If you would like to suggest a word, term or jargon NOT currently in the PRP Glossary, please “Leave