PRP Advocacy

(1) Ginny M– Lexington, South Carolina “So Joey our 15-year-old who takes Stelara , tested positive for Covid-19. He had a sniffle and a low grade fever but lost his taste and smell. My bestie works the COVID floor so she said got him tested since he could not taste. Anyway, I am sharing because

Editor’s Note Lisa Sims (Sebewaning, Michigan) shared the following story with me. Normally a story about COVID-19 and the pandemic doesn’t make it into the PRP Survival Guide. However, the phrase “those who have auto-inflammatory diseases” made it PRP-relevant. SEE VIDEO By Joyce Peterson, WMC Published: Nov. 20, 2020 at 11:04 AM CST MEMPHIS, Tenn.

In medicine, a COHORT is a group that is part of a clinical trial or study and is observed over a period of time. The largest cohort of PRP patients was assembled in late 2018 by the PRP global community. A total of 574 PRP patients participated in a comprehensive survey developed by UCLA David

From the Editor… The following information has been retrieved from the US Food & Drug Administration. There are more opportunities today than ever before to learn about your health and to take better care of yourself. It is also more important than ever to know about the medicines you take. If you take several different

  While I faced the typical and predictable challenges to body, mind and spirit all PRP patients face, there was one major exception: the workplace. I was retired when the “Red Bastard” came knocking on my door in August 2012 Every PRP journey is unique. For many PRP patients the onset of pityriasis rubra pilaris

Editor’s Note – Murray Rose recently posted an article to the PRP Facebook Support Group. Itch and Mental Health in Dermatological Patients across Europe: A Cross-Sectional Study in 13 Countries, Journal of Investigative Dermatology, September 3, 2019 Most of the article goes well beyond what a PRP patient without medical training can understand. The following,

From the Editor   The following is an introduction to the Americans with Disabilities Act with links to third-party websites with additional information. Discrimination and ADA rights The following is presented only as a guideline of the federal Americans with Disabilities Act (ADA). State laws may also affect your eligibility and rights. Consult the EEOC