From the Editor…
For those who accept the prevalence estimates established by Dr. Griffiths in March 2003, juvenile onset PRP represents 45% of the patient population.
The PRP Community Census has Identified 149 PRP patients who have reported a diagnosis of juvenile onset PRP. Considering the fact that 817 PRP patients have not indicated whether they are adult or juvenile, there are a few more hiding in the weeds.
Among the 149 who have confirmed juvenile onset, a total of 121 (81.2%) have confirmed an onset age.
1 to < 2 — 6
2 to < 3 — 11
3 to < 4 — 21
4 to < 5 — 15
5 to < 6 — 5
6 to < 7 — 10
7 to < 8 — 4
8 to < 9 — 11
9 to < 10 — 7
10 to < 11 — 7
11 to < 12 — 4
12 to < 13 — 1
13 to < 14 — 1
14 to < 15 — 6
15 to < 16 — 2
16 to < 17 — 3
17 to < 18 — 4
18 to < 19 — 2
19 to < 20 — 1
From time to time these numbers will be updated as more PRP parents identify themselves and include the onset age.
The PRP Patient Population — Juvenile Onset