October 2020

Can PRP be cured? GREAT topic to ponder. The consensus among dermatologists is that there is NO CURE for pityriasis rubra pilaris. What’s missing is the medical definition of the word CURE that patients and healthcare professionals can agree upon. ❏» Does remission mean that the PRP patient is cured? ❏» What is the “official” […]

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Editor’s Note: This webpage provides an overview of the PRP Global Database as of October 11, 2020. ❏± What PRP-related data have we captured? What is still missing? ❏± Why is the data we seek so important to every member of the PRP global community? Whether you are a patient, loving caregiver (spouse, partner, or

Editor’s Note – The Aplastic Anemia & MDS International Foundation developed a self-advocacy brochure that is worthy of note. It is unlikely, however, that rank and file PRP patients and caregivers will go cover-to-cover and digest every golden nugget of wisdom. With that in mind, the following represents an effort to customize their general information

From the Editor The PRP Survival Guide is designed to be a repository of experiences and insights shared by PRP patients and their caregivers. Collectively, the PRP community possesses a wealth of practical knowledge about pityriasis rubra pilaris. Only we can harvest that knowledge. Share what you have learned about PRP and footwear as a

  Brenda Pauline i used aquaphor religiously but I must say there is probably no cream I haven’t tried. I used heavy greasier stuff at first. Aquaphor, eucerin, gold bond medicated cream, cerave… really I used everything. Bathroom looked like a pharmacy. Now I use aquaphor on some of the drier spots and aveeno on

https://www.facebook.com/groups/15865278115/permalink/10158628990338116/ Link to Original Post   Steven B, Northern California First off I want to say thank you for the group acceptance. I have had PRP for the past year and a half and JUST was diagnosed a couple months ago. (Dermatologist thought I had psoriasis for over a year until I got a second

From the Editor The PRP Survival Guide is designed to be a repository of experiences and insights shared by PRP patients and their caregivers. Collectively, the PRP community possesses a wealth of practical knowledge about pityriasis rubra pilaris. Only we can harvest that knowledge. Share what you have learned about PRP and PROGRESS as a

This section of PRP 101 focuses on the daily challenges of body, mind, and spirit encountered by PRP patients and their caregivers. The topics range from ALCOHOL to WORKPLACE. Every PRP journey is unique. The phrase, “my version of PRP”, helps underscore the fact that “What works for one does not work for all.” Forewarned