Editor’s Note: Every so often a member of the PRP Facebook Community shares an inspirational message that should be saved for others to experience. This is the webpage where such messages can be archived for all. The message which has been embedded in the graphic is repeated beneath the image to facilitate translation into over […]
PRP Gallery of Inspirations Read More »
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Editor’s Note The following article appeared in MedicalNewsToday. It was written by Jenna Fletcher and reviewed by Natalie Butler, RD, LD (Sun 3 December 2017). I converted to the PRP Survival Guide so that PRP patients and caregivers can take advantage of the TRANSLATE button. ❏½ What is an anti-inflammatory diet? ❏½ What conditions can
Diet — Anti-inflammatory diet: What to know Read More »
Why is guselkumab prescribed? Guselkumab injection is used to treat moderate to severe plaque psoriasis (a skin disease in which red, scaly patches form on some areas of the body) in people whose psoriasis is too severe to be treated by topical medications alone. Guselkumab injection is in a class of medications called monoclonal antibodies.
What do I need to know about guselkumab/Tremfya? Read More »
From the Editor The PRP Survival Guide is designed to be a repository of experiences and insights shared by PRP patients and their caregivers. Collectively, the PRP community possesses a wealth of practical knowledge about pityriasis rubra pilaris. Only we are best positioned to harvest that knowledge. Share what you have learned about financial aid
Financial Assistance Read More »
From the Editor The first step in the development of a newsletter to serve the needs of the Global PRP Community is to understand our resources. The global PRP community has four pillars of communication. Each pillar serves a specific purpose. Pillar #1 – PRP Facebook Support Group With a current membership of 1,532, the
The Four Pillars of PRP Communication Read More »
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Protected: PRP Report Version 1 Read More »
Editor’s Note: I always get nervous when a member posts a link to a third-party website. On March 20, Pam A (Tavistock, Devon, England, UK) shared a link to an article written by Helena Önneby. A First Aid Kit When Life Falls Apart. “What if pain–like love–is just a place brave people visit?” ~Glennon Doyle
A First Aid Kit When Life Falls Apart Read More »
What do you take for the pain and itch of PRP? If you are a member of the PRP Facebook Support Group, CLICK HERE to access the original, unedited post (March 19, 2019) and add your two cents. Roy T – Rehoboth Beach, DE I take gabapentin. 4 or 5 100mg pills a day as
Land of Chat — PAIN & ITCH Feedback Read More »
From the Editor The PRP Survival Guide is designed to be a repository of experiences and insights shared by PRP patients and their caregivers. Collectively, the PRP community possesses a wealth of practical knowledge about pityriasis rubra pilaris. Only we are best positioned to harvest that knowledge. Share what you have learned about flares and