What are tips to reduce swelling of feet and legs? Stewart L (Portsmouth, Hampshire, England) I used tight socks like ones you buy for hiking as they gave me best support and could pack cream under them Mary H (Novato, California, USA) Elevate your legs and rest. You have to get off your feet or […]
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From the Editor The PRP Survival Guide is designed to be a repository of experiences and insights shared by PRP patients and their caregivers. Collectively, the PRP community possesses a wealth of practical knowledge about pityriasis rubra pilaris. Only we can harvest that knowledge. Sometimes we find resources worthy of bookmarking. NAME GOES HERE falls
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From the Editor The late Tierney Ratti (1961-2020) was a PRP veteran who became the Gold Standard of caring and sharing. Her journey began in 1972 at the age of 11 with the onset of pityriasis rubra pilaris. She was one of the original “Pretty Red People” who traded emails on AOL – You’ve Got
PRP Facebook Support Group Read More »
From the Editor The PRP Survival Guide is designed to be a repository of experiences and insights shared by PRP patients and their caregivers. Collectively, the PRP community possesses a wealth of practical knowledge about pityriasis rubra pilaris. Only we can harvest that knowledge. Sometimes we find resources worthy of bookmarking. The National Organization of
National Organization of Rare Disorders (NORD) Read More »
From the Editor The PRP Survival Guide is designed to be a repository of experiences and insights shared by PRP patients and their caregivers. Collectively, the PRP community possesses a wealth of practical knowledge about pityriasis rubra pilaris. Only we can harvest that knowledge. Sometimes we find resources worthy of bookmarking. The Generic and Rare
Generic and Rare Diseases (GARD) Information Center Read More »
From the Editor The following was posted on March 25, 2017 and introduced a new “glove” product. The unedited post/comments are available to PRP Facebook Support Group Members at: https://www.facebook.com/groups/15865278115/permalink/10155052461758116/?match=bml0cmlsZQ%3D%3D Abbas V – London, England, UK I’m trying out VITRILE glove. It’s a hybrid Nitrile with vinyl. So far my preferred glove as it combines
PRP and Vitrile Gloves Read More »
From the Editor The PRP Survival Guide is designed to be a repository of experiences and insights shared by PRP patients and their caregivers. Collectively, the PRP community possesses a wealth of practical knowledge about pityriasis rubra pilaris. Only we can harvest that knowledge. Tell us your story. Share what you have learned as a
PRP Journeys — The Road Less Traveled Read More »
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Protected: PRP Self-Advocacy — The Clinic Visit Read More »
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Protected: Austin Galt Exchange Read More »
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Protected: RSDRI Diary Read More »